Sunday, February 10, 2019

Autism Sunday

Today is Autism Sunday, also known as the International Day of Prayer for Autism Spectrum Disorders.  It was initiated in 2002 by parents and carers Ivan Corea and Charika Corea, to urge leaders of religious organisations, churches, community groups and world leaders around the globe to speak up for people with autism spectrum disorders.  Here are 10 books about ASD.

15 Things They Forgot to Tell You About Autism: The Stuff That Transformed My Life as an Autism Parent by Debby Elley - What if the things people need to know about autism is not the information they're getting? Combining myth-busting advice with personal experience, this book from the mother of autistic twins shares simple strategies to build children's confidence, communication, and independence. From sharing the joy of yodelling around shops at the weekend, to finding creative ways to communicate with both her verbal and her non-verbal sons, Debby Elley gives practical and fun tips for everyday living and shows that being autistic is just another way of being. Both witty and candid, the book discusses labels, meltdowns, acceptance, happiness and much more.

An Adult With an Autism Diagnosis: A Guide for the Newly Diagnosed by Gillan Drew - Being diagnosed with autism as an adult can be disorienting and isolating; however, if you can understand the condition and how it affects perceptions, relationships, and your relationship with the world in general, a happy and successful life is attainable. Through an introduction to the autism spectrum, and how the Level 1 diagnosis is characterised, the author draws on personal experiences to provide positive advice on dealing with life, health, and relationships following an adult diagnosis.
The effect of autism on social skills is described with tips for dealing with family and personal relationships, parenting, living arrangements, and employment. Important topics include disclosure, available resources, and options for different therapeutic routes. On reading this book, you will learn a lot more about the autism spectrum at Level 1, be able to separate the facts from the myths, and gain an appreciation of the strengths of autism, and how autism can affect many aspects of everyday life. Drawing from the author's lived experience, this book is an essential guide for all newly diagnosed adults on the autism spectrum, their families and friends, and all professionals new to working with adults with ASDs.

Autism Every Day: Over 150 Strategies Lived and Learned by a Professional Autism Consultant with 3 Sons on the Spectrum by Alyson Beytien - Stemming from a wealth of both professional and personal experience, this guidebook combines real-life stories of challenges and successes with practical ideas for handling autism, every day. Autism consultant Alyson Beytien outlines over 150 tried-and-true techniques for home, school, and community.
Alyson's three boys cover the whole spectrum of autism--Asperger's syndrome, high-functioning autism, and classic autism. She understands the wide range of needs these children have and has discovered what helps and what hinders. Covering a full gamut of issues--from picky-eating and echolalia to IEPs and "The Woes of Walmart"--Alyson's ideas and interventions will inspire and inform all those who are connected to a person with autism.Alyson believes that each day brings more opportunities to learn, problem-solve, and celebrate the joys that children with autism bring to our world--after all, today's crisis is tomorrow's humor. Her family's motto will soon become your everyday mantra: "Improvise and Overcome!"

Caring for Autism: Practical Advice From a Parent and Physician by Michael Ellis - When a professional states, "Your child has Autism Spectrum Disorder (ASD)", it is enough to make your whole world fall apart. What does it mean to be on the autism spectrum? How will this affect your child's life, your life, the life of your family, and others you interact with? What sorts ofmedications, therapies, and alternative methods are used to help manage the disorder? What are the financial and legal ramifications? How will this affect schooling, your spiritual growth, and everyday life? These are just a few of the questions that will rapidly cross your mind. Caring for Autism: Practical Advice from a Parent and Physician delves into all these questions and more. As the father of a daughter with ASD and as a trained psychiatrist who specializes in ASD, Dr. Michael A. Ellis provides a holistic view of what comes after diagnosis. In user-friendly tones, heanswers the most commonly asked questions about what it's actually like to live with ASD, what medications and therapies are available, and the global impact it has on the child's environment. With the help of his wife, Lori Layton Ellis, to provide a mother's perspective, Dr. Ellis shares personalstories of their 10-year journey in order to provide insight and support for anyone - patient, parent, caregiver - traversing the difficulties of autism.

Carly's Voice: Breaking Through Autism by Arthur Fleischmann with Carly Fleischmann- At the age of two, Carly Fleischmann was diagnosed with severe autism and an oral motor condition that prevented her from speaking. Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough.
While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment.
This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter.
In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence by Chantal Sicile-Kira - In the next five years, hundreds of thousands of children with autism spectrum disorder will reach adulthood. And while diagnosis and treatment for children has improved dramatically in recent years, no one is answering the question that plagues so many parents: What happens to my child when I am no longer able to care for or assist him? In this ground-breaking book, autism expert Chantal Sicile-Kira and her son Jeremy take on the challenge of planning for the full lifespan. Working together and drawing on the insights of others facing the same challenges, they offer real solutions to a host of difficult questions, including how young adults across the autism spectrum can:
*negotiate adult life in this new economy where adult service resources are scarce
*cope with the difficulties of living apart from the nuclear family
*create and maintain a support network, including friends, support staff, and therapists
*find and keep a job that provides meaning, stability and an income
*discover the joys of fulfilling relationships

In a Different Key: The Story of Autism by John Donvan - Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism--by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.
This is also a story of fierce controversies--from the question of whether there is truly an autism "epidemic," and whether vaccines played a part in it; to scandals involving "facilitated communication," one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.
By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.

Make a Wish for Me: A Family's Recovery From Autism by LeeAndra Chergey - When LeeAndra Chergey is told that her son, Ryan, is no longer considered "normal," she and her family are forced into a new way of handling the outside world. Together, Chergey's family and a team of carefully chosen therapists put in years of hard work, and eventually teach Ryan to speak and express emotions. Through it all, Chergey follows her heart--and in the process, she learns that being "normal" is not nearly as important as providing your child with a life full of joy, love, and acceptance. Tender and candid, Make A Wish For Me is a story of accepting and tackling a disability stigmatized and misunderstood by society.

Neurotribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman - A groundbreaking book that upends conventional thinking about autism and suggests a broader model for acceptance, understanding, and full participation in society for people who think differently. What is autism: a devastating developmental disorder, a lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more--and the future of our society depends on our understanding it. WIRED reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest days of autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle, while mapping out a path for our society toward a more humane world in which people with learning differences and those who love them have access to the resources they need to live happier, healthier, more secure, and more meaningful lives. Along the way, he reveals the untold story of Hans Asperger, the father of Asperger's syndrome, whose "little professors" were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

Uniquely Human: A Different Way of Seeing Autism by Barry Prizant - Autism therapy typically focuses on ridding individuals of "autistic" symptoms such as difficulties interacting socially, problems in communicating, sensory challenges, and repetitive behavior patterns. Now Dr. Barry M. Prizant offers a new and compelling paradigm: the most successful approaches to autism don't aim at fixing a person by eliminating symptoms, but rather seeking to understand the individual's experience and what underlies the behavior.

No comments:

Post a Comment